This evidence theme on acute care transfers near the end of life is a summary of one of the key topics identified by a scoping review of the palliative care research. If you need more information on this topic, try using the PubMed search below.
We identified 11 systematic reviews on this topic. These examined rates of transfers near the end of life, [3, 5] the factors influencing decisions to transfer a resident, [2, 6-8] likely outcomes of transfers, [9, 10] and strategies that have been trialled by facilities to reduce the number of inappropriate, non-beneficial patient transfers. [1, 11, 12]
Why do acute care transfers occur at the end of life?
Decisions to transfer people to an emergency department near the end of their life can be difficult to make and may be influenced by a range of personal, organisational, and policy factors. [2, 4] Firstly, people nearing the end of life generally have more complex care needs due to increased frailty, multimorbidity, and the use of multiple medications. [2] This complexity can make hospitalisation, or an emergency department visit unavoidable when expected benefits outweigh the potential burden on the resident. [3] Residential aged care facilities in Australia are mostly staffed by direct care workers with few registered nurses on hand to provide a clinical assessment of a person’s needs. Staff on duty may not have the skills to determine if a resident is near to the end of life or if care might be provided in the home. They may also lack timely access to doctors or palliative care specialists to help with decision-making, especially after hours. The decision to transfer to acute care is, therefore, often considered the safest course of action when a person’s care needs exceed the facility’s treatment resources and the capabilities of its staff. [6] Family members might also request a higher level of medical care for their loved ones when they notice signs of deterioration or if they have concerns about the quality of medical care at hand. [2]
Common reasons for acute care transfers include:
- Respiratory or urinary tract infections
- Falls, particularly when leading to fractures
- Cardiovascular illnesses such as heart failure
- Altered mental states such as delirium
- Complications with permanent indwelling devices (e.g., percutaneous endoscopic gastrostomy tube or catheter)
- Chronic pain
- Drug-related complications. [8, 9]
Why are acute care transfers sometimes best avoided?
High demand on emergency departments can mean older people experience long wait times to receive care past that provided by paramedics. [12] Residents of aged care facilities appear to wait longer for medical attention in emergency departments than community-dwelling older people with over 37% waiting for over eight hours. [9] Those residents most unwell on arrival tend to wait the longest of all. [9] A small proportion of people (1-5%) will end up dying in the emergency department. [9]
Residents of aged care facilities also experience higher rates of invasive and uncomfortable diagnostic and treatment interventions in the emergency department compared to community-dwelling older people. [9] This can include blood tests and the insertion of an intravenous cannula or indwelling urinary catheter. [9] Around 85% of people transferred near the end of life will have diagnostic imaging that involves them moving between beds and departments. A majority will also be given medications with the potential of causing adverse drug reactions. [9]
People nearing the end of life are also at increased risk of developing problems based on being in an acute care setting. These include problems of undernutrition, skin tears, hospital-acquired infections, pressure ulcers, delirium, and further functional decline. [1, 6, 9] They also have a high risk of dying in these settings, [3, 9, 13] which will often not be in line with their wishes. [11] Most deaths occur within one week of admission to the hospital and up to 50% within the first three days. [9] People with dementia can experience a high level of distress when transferred to an emergency department or after admission to hospital; however, it appears that aged care residents with dementia are often less likely to be hospitalised and receive aggressive treatment at the end of life than people not living with dementia. [7]
When might a transfer be inappropriate?
Transferring someone from their home environment to an acute care facility may be inappropriate:
- When a problem can be adequately treated or prevented from occurring in the aged care setting [10]
- When the person has an advance care plan or advance directive in place that requests limited treatment at the end of life [10]
- When the level of personal discomfort or confusion likely to be caused by a transfer outweighs the probable benefits of the move to acute care [10]
- When the person is unlikely to benefit from any further active treatment. [10]
Reducing acute care transfers near the end of life
Most reviews reported an association between residential aged care facilities with staff competent in palliative care, or able to access specialist nurse expertise, and reduced rates of transfers to acute care settings near the end of life. [3, 5-7, 12] One review found that late transfers and hospital admissions were reduced by seven per cent when facility staff had access to the expertise of a palliative care nurse who modelled good end-of-life care to other staff. [12] For people living with advanced dementia, consultations by nurse practitioners with palliative care expertise reduced transfers when goals of care and symptom management were addressed. [12] Earlier consultations also appear effective than later ones, with consultations taking place one to two months before the resident’s death nearly halving the rate of emergency visits. [12] Hospitalisation rates were also reduced for residents with advance care plans or advance directives in place. [1, 3, 8] Educational programs providing aged care staff with training in how to discuss and document end-of-life care wishes might therefore make an effective indirect contribution to reducing unnecessary transfers. [11]
Several other factors capable of reducing transfers to hospital were identified across the reviews. These include:
- Higher staff to patient ratios [8]
- Greater availability of, or access to, skilled residential aged care nursing and medical staff, including nurse practitioners, general practitioners, and specialist geriatricians [3, 8, 11]
- Substitute decision makers with a high level of understanding of the clinical course of advanced dementia [8]
- Regular residential care medication reviews by clinical pharmacists. [11]
